Milestones and Hurdles

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Friday, March 7, 2008

Ford Tough Working To Get Back on C-PAP With His Brother, Hayden

Hello again friends!
We are trying to be better about blogging about our sweet boys, Ford and Hayden because we really do love keeping you updated and talking about our little miracles. Unfortunately, we get so busy in the NICU day in and day out... we usually collapse from exhaustion when we get home.

On Wednesday, our doctor tried Ford off the ventilator and onto bubble C-PAP, which is basically pressure and oxygen from a bubbling aparatus that flows through prongs in his nose. It is what Hayden's been on for over a week now. Ford gave it his best, but had to go back on the ventilator. He just needs more pressure to keep his lungs inflated right now than the bubble c-pap can provide. He made it 18 hours on the bubble c-pap before he tired out and had to go back on the vent. The doctors said it was not a failure... he is just not ready and we needed to know that. At least he made it 18 hours so we now he can do it... he just needs more time to grow and get his lungs healther. I have to admit I was a sad... I had prayed so hard about it and firmly believed he would make it. But, I know this he WILL GET OFF THE VENT & COME HOME! Ford just needs more time to grow his lungs. That's what I am praying for and hope you will too. He really does look good. He smiles a lot, bats his handsome big blue eyes and laughs sometimes as well. We are so blessed.

Hayden is still plugging a long on the bubble c-pap. We are hoping next week we can get him on oxygen and feeding him by mouth instead of by tube all of the time. He too looks really good and he loves his pacifier, loves to eat and loves to be held by his mommy and daddy. They are both gaining weight nicely. They weigh about 4 1/2 pounds each now and finally don't look or feel so frail. I am loving that.

Tonight we were so blessed. We were talking to our new friends who have a 23-weaker who is getting close to coming home... when we ran across a couple who had 2 very cute toddlers. We came to find out their twins, a boy and a girl, were 26 weekers. They spent 3 months in the NICU... today their children are home with them after many hurdles. It's like we were meant to meet them... to renew our faith and hope that Ford and Hayden will make it through all of this. We need little reminders like that from time to time. The mom informed us that when she told the kids they were going to Cook Children's hospital today... the little boy started uttering Jesus' name over and over again. Coincidence? Of course not, we needed to hear their story!!!

Trey and I are so thankful for all of you--
Dana, Trey Hayden and Ford

18 comments:

mommyof5 said...

I was wondering if you have gotten any help from the March Of Dimes? If so, could I use your blog to help me show my friends and family why it is imporant to help support The March of Dimes. I am doing the 5 mile walk for the March of Dimes March for Babies in April. I am trying hard to raise money for this. But I am having a hard time. Your story and the story of your beautiful boys I think would help them see what the March of Dimes does. I will be praying for your boys. I also have twins (they were not born early though). But I have friends that little ones were born early. Just continue to trust the Lord!!

Mommy of 5

Anonymous said...

How wonderful to hear the boys are continuing to progress and grow!

While you are busy caring for the boys each day, also remember to give yourselves permission to care for yourselves personally and for each other. It is easy to think it isn't important when the children require so much. And it's hard to do at first; but over time, you will come to know it gives you renewed strength and energy.

Hope all of you have a great weekend. Looking forward to your next report.

Joannie in Sugar Land

A Cole said...

Happy 2 month birthday Ford and Hayden! God Bless all of you as you continue this journey of faith. I can't help but rejoice when I look back at the boys' arrival and what all has transpired since then. What a great miracle our Lord has performed in your lives. May His blessings and sustaining hand be with you always. Anita Cole

Anonymous said...

Happy 2 months! You two boys are growing great! Thanks for the update. I continue to pray for those sweet baby boys! I pray that this week will bring lots of strength to those tiny lungs! I can't wait to hear how much they progress this week!

Jeff & Debra said...

What a blessing! Ford and Hayden continue to grow and their weight gain is just awesome. You WILL one day bring those precious babies home to East Texas Dana. They have come so far! I know you and Trey have to be exhausted and yet you continue to help care for your babies and to love them and watch them grow. It's wonderful to see their little personalities develope and to see a baby look at you and to depend on you is just wonderful. My Mom is with you now, holding your precious miracles at night while you and Trey rest. She will be there until you return home. Although you are going through rough waters right now, you and Trey are still so blessed. I continue to pray for Ford and Hayden and know that each day is just one day closer to coming home. I continue to pray that Our Lord and Savior will contiue to give you and Trey the strength to carry on this journey. You have many prayers going up for all of you daily! I love you all!!

Debra Bunt
Gladewater, Texas

kt said...

Keep up your strenght, your faith and those prayers. WE love your little boys (and your entire family) here in Longview, TX.

Anonymous said...

Thank you again for your update and sharing the story of the people you met...God is sooo good! We are so thankful for the continued healing of your precious little guys! You ALL will continue to be in our prayers! Take care of yourselves...you're gonna need lots of strength keeping up with those two when they get home! ha! Blessings and love,
B&BRowland

Teresa T. said...

It won't be long now! I know you both are already looking back at the not so good times and thinking how far all of you have came.
Soon everyone will be home and looking back where you are right now.
I woke up at 2:00 A.M. this Monday morning thinking of these babies, Dad and Mom and said a prayer. We are still here and have not forgotten. Thank you for the updates. We are blessed you think of us during your busy times.

Jean said...

Happy Birthday to Ford and Hayden!
How are your Mom and Dad doing? I can hardly wait to get to have all the family together and see the cousins play! Love you and want to come and visit...Love Nanie and Grumpy!

Anonymous said...

hello hughey family
i was just reading your update on the boys. it just makes my day to see that the boys are doing so good. we have a great big god and if we just put our trust in him he will take care of you and yur little family. just keep all your trust in the lord and you will see him work. again we are praying for all of you.
frances
diboll tx.

Anonymous said...

A wise Dr advises you to spend some time to yourselves because you will be very busy when thses young men come home!!!!!!!!

Anonymous said...

Dana and Trey,

It has been several days since I was able to check to see how "the boys" were doing. Sounds as though they are doing pretty well!

I continue to pray for all of you in between praying for my grandchildren. Gosh, I will save that story for you two for a later date.

Just know we are here.

Hugs,

Pam J.

Anonymous said...

Still praying...thank you for the update. May God bless you with strength beyond your own abilities. Take care of each other, and know we are praying.

yocumvl said...

Great news guys. We watch all the time to see the updates and see pictures of the boys. They are really growing and getting stronger thats so good to hear. We will continue with the ongoing prayers and best wishes for your return to what will be normalcy in your everyday life with twins to chase around the house and keep occupied long enough for you to have a nice dinner or just relax. I am sure that seems so far away but it will happen. I know with your faith and all the prayers for your blessed family it will be soon.

Anonymous said...

I just wanted to tell all of your family, especially Ford and Hayden, that I am praying for all of you. I cannot even begin to understand the overwhelming feeling that you and your husband have been going through. I just want you to know that Jesus and the Lord Above are watching out for ALL of you. Thank you for reading this. Sincerely, Kathy R./Broaddus, Tx.

East TX Mom said...

YOU ARE TRULY BLESSED WITH 2 MIRACLES FROM GOD. I FOLLOW THEIR STORY DAILY ALWAYS CHECKING FOR UPDATES. I HAVE BEEN IN YOUR SHOES BEFORE. I GAVE BIRTH 6 YEARS AGO TO PREMATURE TWIN BOYS WEIGHING 2LBS EACH. TRAGLEY 5 DAYS LATER GOD TOOK AN ANGEL HOME. TODAY I HAVE 1 HEALTHY LITTLE BOY WHO BEAT THE ODDS AND IS PERFECTLY HEALTHY. YOU WILL NEVER KNOW HOW MANY LIVES YOU HAVE TOUCHED AND HOW GRATEFUL I AM THAT YOU ALLOW US TO BE A PART OF THEIR LIVES. GOD BLESSED YOU AND YOU HAVE BLESSED US WITH SHARING THEM. THANK YOU.

Anonymous said...

Still thinking about you all the time. I miss you both and can't wait to meet the boys!

Love,
Melissa Mobley

Anonymous said...

Trey & Dana, I just wanted you to know that we are still diligently praying for the four of you. I understand the ups and downs...but Ford going back on the vent just gives him more time to get stronger...trust me, it'll happen. Our girls have been home for 4 months now and Dr. Barret said you'd never know they were such preemies! Hang in there...know you are all loved and covered in prayer by thousands across the world!! What a story those little boys will have!!

In His Grip!
Kristi Cole

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