One of the days we've been waiting for since we became parents finally arrived Wednesday, April 30th. Our little son, Hayden was finally released from the NICU and the hospital. Of course, it was a bittersweet day because we were not able to take our sweet Ford home as well. He is working hard though to join his brother!
For the prior 2 nights, we roomed in at the hospital to make sure we had his schedule down... feeding him, caring for him and giving him his medicine.
He still fights us at times taking all of his feeds, but we are working on it and just praying he continues to gain weight. We have a doctor's appointment on Friday with the pediatrician so hopefully he still will be looking good. Feeding is his major issue. He is also home on a wiff of oxygen, but hopefully that will be only a month long since we have an appointment with the pulmonologist in a month.
Our first trip in the car with Hayden leaving Cook Children's hosptial was wonderful. He enjoyed his trip in his car seat. I rode with him in the back while Trey drove us back to our apartment in Fort Worth. Hayden's Big Daddy and Big Honey (Trey's parents) came to see Hayden's big day leaving the hospital. Hayden has already napped in his pack and play, swung in his swing... and napped extinsively in his mommy's, daddy's and big honey's arms.
Of course we are a bit sleep deprived, but it is all worth it!!!
Doesn't Hayden look handsome in his going home outfit from the hospital. He saw the outside world for the first time and I think he loved it! We really are so thankful to the Lord for blessing us with this huge milestone in our lives. There were times when the light at the end of the tunnel seemed so far away, so dark... but we are now benefitting from our faith that the boys would make it through their dark days.
There was another big milestone yesterday and this was Mr. Ford's! He was taken off the bubble c-pap and placed on high flow oxygen again. So far... he is doing really good. That is so huge for him and for us because his lungs have been so so sick. Our pulmonologist reminds me all of the time just how far he has come! I don't have pictures of this yet because we were so busy bringin Hayden home yesterday... but I can't wait to show him off! I do have pics of his days on the bubble c-pap! Please keep him in your prayers that this time it WILL work. He is such an amazing little boy... overcoming kidney stones and coping with lung disease. I am amazed by him!
Please keep both of the boys in your thoughts and prayers because we really want to come home soon and back to our family and friends! We pray Hayden gets better eating and comes off his oxygen and that Ford learns to eat and get lower on his oxygen.
Thank you for loving and caring about us.
Dana, Trey, Ford and Hayden