Milestones and Hurdles

Lilypie Kids birthday Ticker

Wednesday, May 21, 2008

Quick Update as of Wednesday the 21st of May

I would first like to begin by apologizing for the lengthy delay b/w postings…this full time job of being parents has kept us quite busy. As mentioned in our last post, Hayden is out of the Hospital and he is doing very well. Not sleeping as much as we would like…but we are going to be the last to complain. Our Ford is still in the NICU...now on a 1/8th of a liter of oxygen. The main reason Ford is still in the Hospital is that he is not eating as well as the doctors would like. He is not a fan of eating from the bottle. In order for Ford to be released, he has to eat all 8 of his meals each day by bottle. He is currently eating every other meal by bottle and the rest by his feeding tube. He eats 80 ml each feed, and has trouble swallowing the entire feed. He has such an oral aversion…mainly from being intubated for such a long time. He fights his feeds so much. So for the past week or so, we have been waiting for his feeding to click…but that has obviously not happened yet. We are holding out hope that Ford will be released and the entire Hughey clan will be home in Tyler by early part of June. We continue to pray that our boys will one day be healthy little babies…they will continue to have their hurdles…but we are overjoyed with the way they have turned out. The fight that these two kiddos have put up so far, at such an early stage in their life is overly inspiring. These “little fighters” who were given very bleak odds to make it through their first night, have shown unbelievable resilience and have overcome remarkable hurdles. Without your prayers and well-wishes being sent their way each day….who knows what the outcome would have been. Dana and I firmly believe that the power of prayer kept our boys going…and most definitely kept us going. So from the bottom of our hearts…we thank you and will forever be indebted to all of the magnificent friends that we have made along the way. This experience turned our lives upside down and inside out…our way of life and daily routines changed on January 8th. Our faith has grown exponentially throughout this journey….I thought I knew how to pray before all of this started, how naïve I was. Now I can say with certain, that I along with Dana have seen prayers being answered by our wonderful Lord and Savior. He is most definitely the Lord of all Lords. And we are forever Thankful and Grateful to have him working behind the scenes on our behalf. Thank You…Thank You…Thank You!!

18 comments:

Anonymous said...

What a treat to read your most recent update. We out here in siber-space have followed your journey for these past 4 months 1 week and 6 days, and pray daily for your family. So it is heart warming to read the progress your twins have made as well as read about the specific hurdles that are left to conquer. So good to read that Hayden is progressing at home and that Ford continues to make positive progress as well. We will pray that Our Lord will continue to heal Ford's physical needs and give him the strength and developmental aids to master his feedings. Your twins have come so far by the grace and mercy of our Lord, and know that the Lord will continue to keep them in his tender care.
Since the birth of your twins you have watched a miracle unfold right before your eyes, and He is not finished, "I will be with you always", says the Lord.
God bless you all!

Anonymous said...

Praise the Lord. We are praying for you all. He is The Lord of Lords!!!!

Anonymous said...

Oh yeah! I'm so glad to hear Ford is getting close to coming home. I was so excited to see the update, and I continue to keep you in my thoughts and prayers. The Lord is good and he will continue to be with you and the boys as you finish your NICU days. They are precious miracles, and I am so thankful for all the strides they have made. Enjoy your time...they grow up so fast...you will turn around and wonder where these days went as you watch them run around...they definitely don't stay little long. I pray you are all home in Tyler soon! Get some rest and keep smiling! You are great parents!

Anonymous said...

I think about you often. So good to have an update. Best wishes to the entire family.

Joannie in Sugar Land

Anonymous said...

Praise God for HIS blessings! How happy I was to see the update this morning. I too pray for God to continue to watch over the Hughey family. Thank you so much for keeping us posted. Enjoy the nights awake, being able to feed, change those diapers and see the sweet smile on those boys faces! It won't be long till they are heading out to school - and on to college! Savor those precious moments. You are great parents and God will Bless you. Always remember to give God the glory for the miracles in your lives. I to will continue to pray for ya'll
love and prayers
Mary Curry - Broaddus, TX

Anonymous said...

Thank you so much for the update, we were really starting to worry. Still praying, and will continue to do so. May God hold you in His arms and give you strength and protection.

Anonymous said...

Dear Hugheys,

There is light at the end of the tunnel. I am so proud of all of you.

Prayer, faith and determination can certainly go a long way!

I am anxious for you all to get home to Tyler. Your lives will never be the same but the joy your little ones give will be your guiding light.

Praise be to God!

Pam J.

Anonymous said...

am late getting this message to the hughey family but you have all been in my thoughts and prayers.. i am the grandmother of a miracle 1lb 11 ozs..12 inches long... that was 4 years ago and yet it seems like yesterday it is indeed a miracle and a very humbling experience... continue to remember you are never alone ...you must be very special people for god to have blessed you with 2 ..continued success..

Anonymous said...

Miracles happens around us everyday - we just don't always see them!

We have friends that were in the same position...when all the odds were against them, but through a lot of prayers God took their little angel in His hands and did another miracle.

Today she is almost 3 years old and healthy as can be!

There is endless power in praying!!

I hope and pray that you will all be together soon.

Anonymous said...

so glad to see you posted an update on your precious boys, i continued to check every day to see is you had updated information...your family continues to be in my prayers..nana from gilmer

Anonymous said...

Hi, Bubs and Dana!

I'm so excited that you are all home together now! I can't wait to come see you al and help with the precious little angels as much as I can.

I love y'al and I'm so proud to be your sister & sistern-in-law.

See you when we get back!
Aunt Hills

Anonymous said...

I am assuming that Lil Ford is home now. YEAH!!!! I don't expect to see many updates now you all want have time for this stuff. I don't blame you. You should be enjoying your precious gifts instead of keeping the world involved, it is time to focus only on your family. Thanks for allowing us all to be involved thus far. I will continue to pray for you all. God Bless you all. I pray that he pours down blessings that is overflowing with good health and prosperous lives for you all.

Anonymous said...

Hi! I am a mom in Tyler who has been keeping up with your boys' courageous journey. They are strong little guys and have made so much progress! The boys have already been through so much in their young lives that I hope they aren't made to go through any unnecessary procedures such as circumcision. National medical organizations, such as the AAP and WHO do NOT recommend it. 50% of the boys born in the US are intact (uncircumcised), including my own precious son, and 80% of the men in the world are intact, happy and problem-free. I hope your boys will get to keep their bodies just as God made them: whole.

http://www.cirp.org/pages/parents

Anonymous said...

Thank you God! It was so GREAT to see you all on KLTV tonite. Praise his holy name. Isn't it wonderful to be able to lose sleep to watch them sleep and wiggle. Enjoy them it want be long until they will be up and running. These days will be a blur. Things you think you will never forget will be so hard to recall.Perfect little family!God Bless you all

Anonymous said...

What a wonderful blessing... I know that y'all are happy to have the boys home in Tyler. May the Lord continue to bless y'all with your two little mircles. The boys are beautiful babies.

yocumvl said...

Wow Great news on KLTV last night I was very excited to hear my family tell me as they watched the early evening news before I was home. Dana and Trey and both twins are back in Tyler. What a joy to hear those words. I know you are both so very excited to have this day finally come. We will continue to watch KLTV and keep up with your progress. Just wanted to say CONGRATULATIONS!!!!!!!!!!!!!!!!!

Anonymous said...

Trey and Dana,

I am so thrilled to hear that you are at home with Ford and Hayden!! Praise the Lord! I watched your story from the news and shed tears as I rejoiced with you at their being home. Thank you for allowing us to keep up with your story and to pray along with you both.

With Love,
Sunny Agness

Anonymous said...

Dana, Thank you so much for the updates. How in the world do you find the time to be so considerate.

It is so wonderful to see these pictures! Priceless!

And you are still just as beautiful extremly tired.

Picture Worth A Thousand Words

Picture Worth A Thousand Words

Proud Parents

Proud Parents

Proud Mommy

Proud Mommy

Proud Papa

Proud Papa

Pics of Ford

Pics of Ford

Pics of Hayden

Pics of Hayden