Wednesday, May 21, 2008
Quick Update as of Wednesday the 21st of May
I would first like to begin by apologizing for the lengthy delay b/w postings…this full time job of being parents has kept us quite busy. As mentioned in our last post, Hayden is out of the Hospital and he is doing very well. Not sleeping as much as we would like…but we are going to be the last to complain. Our Ford is still in the NICU...now on a 1/8th of a liter of oxygen. The main reason Ford is still in the Hospital is that he is not eating as well as the doctors would like. He is not a fan of eating from the bottle. In order for Ford to be released, he has to eat all 8 of his meals each day by bottle. He is currently eating every other meal by bottle and the rest by his feeding tube. He eats 80 ml each feed, and has trouble swallowing the entire feed. He has such an oral aversion…mainly from being intubated for such a long time. He fights his feeds so much. So for the past week or so, we have been waiting for his feeding to click…but that has obviously not happened yet. We are holding out hope that Ford will be released and the entire Hughey clan will be home in Tyler by early part of June. We continue to pray that our boys will one day be healthy little babies…they will continue to have their hurdles…but we are overjoyed with the way they have turned out. The fight that these two kiddos have put up so far, at such an early stage in their life is overly inspiring. These “little fighters” who were given very bleak odds to make it through their first night, have shown unbelievable resilience and have overcome remarkable hurdles. Without your prayers and well-wishes being sent their way each day….who knows what the outcome would have been. Dana and I firmly believe that the power of prayer kept our boys going…and most definitely kept us going. So from the bottom of our hearts…we thank you and will forever be indebted to all of the magnificent friends that we have made along the way. This experience turned our lives upside down and inside out…our way of life and daily routines changed on January 8th. Our faith has grown exponentially throughout this journey….I thought I knew how to pray before all of this started, how naïve I was. Now I can say with certain, that I along with Dana have seen prayers being answered by our wonderful Lord and Savior. He is most definitely the Lord of all Lords. And we are forever Thankful and Grateful to have him working behind the scenes on our behalf. Thank You…Thank You…Thank You!!