Milestones and Hurdles

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Monday, January 19, 2009

Sleepy and... Not So Sleepy Boys

Here are two very sleepy Boys and check it out... Hayden Has Some Bananas on His Nose!


Aren't they sweet? This was after some fine cuisine of sweet potatoes and oatmeal and a little formula to wash it down with last week.

We had a very busy week last week with both of their occupational therapists coming to work with them. The first time since the holidays. They worked on crawling exercises, as well as exercised to help them learn how to sit up on their own. I have to tell you... Ford is not a huge fan of the crawling, but he does like to stand, but he is quite unsteady on his feet so it is actually more like us holding him up! No problem. Hayden is still trying to crawl and getting better every day. I can say as of today, he crawls all over the living room, but still backwards. He did do a lot of rocking back and forth so... I'll keep you posted!

On Friday, we visited the pulmonologist for their RSV shots. He is just so pleased with their progress and said their lungs sounded good and that they seem to be managing their lung disease well. Next year, if all goes well... Ford and Hayden won't have to get the RSV shots. Exciting news. We have a ton of doctors appointments coming up in February. The urologist, pediatrician, nephrologist, eye doc and they pulmonologist again. We are going to be logging some serious miles to Fort Worth. I also have some doctors appointments. Doesn't sound like a lot of fun does it. Just pray they all go well for all of us. That's the most we can ask for. We have been so blessed so far.

Under the advice of the pulmonologist, we continue to keep the boys fairly secluded from the rest of the world and it seems to be working. April... I can't wait for it to get here, but even better is that the boys have stayed quite healthy and being closed up in doors is worth it... if the end result is 2 healthy boys.

The boys are eating really good. They are eating about 3 organic Gerber meals a day, plus formula about every 4 hours or so. We are trying to catch them up still. They are 9 months adjusted age today and I am wondering... Where are their teeth. I can seem them beneath the gums, but none have broken through yet. I look forward to seeing what they look like with chompers.

The past couple of evenings, I have been brave enough to let them sleep without their heart and apnea monitors. The Dr. says they don't need them, but kept the prescription because of RSV season and the uncertainties of it all. I slept okay and still I worry. I look forward to breathing a little in the future when they are just two rambunctious boys without and major medical issues.

Well, so far so good on my resolution to be a better blogger since getting the computer situation handled.

I hope you have all been well thus far in the new year. You are all such a blessing to me. It's nice to know there are so many people out there who care. Hopefully we can all get through this recession unscathed and better for the journey it takes our country on. I have faith it will all be okay. I do ask they you say a prayer for our friends, The Fenders. They have twin sons born at 30 or 31 weeks. One is home now, but the other still needs time. Just pray his recovery is a speedy one so they can all be together for the first time. It is so hard to leave one at the hospital. We did it for a month and the guilt is unimaginable. They are strong and so are their boys!

Now for some weekend photos of the boys playing....

Hayden Trying to Crawl and Play......... Ford Playing and Curious about the FLASH!

I hope you enjoyed the photos. I will keep you posted on what the boys are up to this week. It is always eventful.
Love,
The Hugheys
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6 comments:

Anonymous said...

Dear Dana,

Thank you so much for your updates. The boys are such cute little men!!! I am so happy for their progress..I know this has been such a long road. But with saying that I know they have come so far and are doing well. You and Trey are amazing parents. Keep up the wonderful work! It really does show!!!!!
Sincerely,
The Cash Family
from Mineola:)

Anonymous said...

Dear Dana,
The boys are so Cute!!!! Thanks for taking time out of your busy day to keep all of us updated on those 2 precious baby boys!

Anonymous said...

Thank you for all the pictures. I may have to do a few more clicks to get to the updates but each time I do I am reminded of the wonderful power of Our Awesome God!! They are so cute. I know you are cherrishing every second. Many photo albums to fill the hope chest or book shelf. Pictures are awesome and as they get older they will love to spend a rainy day flipping through them.
God Bless Y'all
Murdock Family

Anonymous said...

My husband and I had our daughter on July 28, 2008 at 31 weeks. She spent the first 70 days in the hospital. She is doing great now. She is still on a small whiff of oxygen but hoping to have that off soon. Your boys are proof that all though it takes time they do progress. Its hard at times when you see other babies doing things faster than yours and wonder will my baby ever do those things. I have to remind myself often to be patient that she has lots of catching up to do. Thank you so much for posting their progress they are precious and inspiration for my family.

Anonymous said...

Trey and Dana,

I checked your blog today for the first time in a while, and I'm so excited to see your two precious boys getting so big! They are adorable! Know that you have lots of people thinking about y'all and continuing to pray for you and your boys!

Meg (Rodman) Randolph

Mike said...

Dear Trey & Dana
Your Faith is an example of how we all should live our lives. Thank you for your recent updates on the Boys. I'm glad they are growing up so well.
I know that God will use us to show the love he has for us through the tough times we endure. I know that God will continue to bless you & your Boys. Because that's the kind of God we have. You will be in my prayers.
God Bless You & Your Family!
Michael A Hughey
Martinsville In.
Please visit my web page
http://sites.google.com/site/hugheysforjesus/

I would love to share your story on this site.

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