Hello again friends! I just got off the phone with our boys doctor, Dr. Lynch. She says she is still pleased with the boys progress even though both Ford and Hayden had setbacks over the weekend. Their mommy had a bit of a setback as well. What I was hoping was a cold or something turned out to be bronchitis and a sinus infection complete with 4 days of fever and thus no time with my boys. TEXT MESSAGING HAS BEEN MY LIFELINE TO THEM. My sweet husband has been by their side while I am fighting this tough infection. He texts me several times and hour with their vital stats, how they are looking and what the doctors and nurses say. He also takes puctures with his phone and texts them to me. That at least helps me feel a little closer to them. I am hoping I can keep the fever at bay and will be able to see them tomorrow (Thursday).
Picture above is our Little Ford from Last Week
Back to how the boys are doing... Ford did not respond very well to a super wean on his ventilator over the weekend so he went from a rate of 28 breaths a minute up to 55 at one point and now he is finally back down to 44. he also had to have a breathing treatment during this time because his breathing was very labored and he was requiring more oxygen as well at the time. Dr. Lynch is now going to start weaning him by 2 each morning so we can work towards getting off the ventilator. I pray... and hope you all will too that this works and he can get off the ventilator sooner rather than later. The doctor also wants him to gain more weight so she is adding some calories to their mommy's milk to help him beef up some. Other than that he is looking pretty good according to the doctor, Trey and of course, the Text Messaged Pictures!!!
Picture above is our Little Hayden from Last Week
Little Hayden was doing amazing on his ventilator he was down to 18 breaths a minute and doing really well until Sunday night when his Oxygen Saturation started to drop and his heart rate too, which scared his nurse and us... I had called her just about the time this happened since I was not able to be at the hospital because of my fever and infection. Trey rushed up to Cook Children's. They immediately got him a breathing treatment, tried to turn his tube to see if that was it... but he just wasn't looking like our Hayden. Now his breathing look labored, so they went up on his rate back to 40 where he started... so the vent was doing most of the work for him. That all helped some, but not enough. They did an Xray to see if something had changed in his lungs, if his tube was in a good place or any other red flags. They did not see anything alarming. By morning they had decided to change his tube because they believed his issues were mechanical. That's why the doctor on call decided to intabate him again with a new tube. His tube was apparantly hard at the end and that can cause problems. He seems to be doing better since then and looking more like himself. That's hard to see in the text messaged pictures, but I am still thankful for them. Today the doctor said his lungs looked a little "wet" so she is going to give him some lasix and hopefully that will help get his oxygen support down as well. I am praying that is the case... I hope you will say a little prayer for his lungs too.
The doctor gave me more hope today that the boys will get off the ventilator despite their chronic lung disease and things will get better for them in the weeks to come. This is something I know will happen because I have faith that God is going to see His 2 miracles, Ford and Hayden, through this. I believe we are supposed to be a family! It is just taking these little handsome men TIME to get well. Trey and I tell them all of the time about the prayers they are getting from all over East Texas and the world now. They may not understand it now, but one day they will. One day they will also understand how blessed they are with amazing doctors and nurses who take care of them. I can't wait to come back in a year and show off how far the boys have come because I believe the Lord has that in our future. I love this bible verse and I lean on it a lot and it was emailed to me again today... I guess someone knew I needed to hear it again.
"I know the plans I have for you," declares the Lord. "Plans to prosper you and not to harm you. Plans to give you a hope and a future." Jeremiah 29:11
We have received so many encouraging words from all of you, many who have experienced the NICU... we thank you for your words and NEVER get tired of hearing from you... You keep us going. All of the people praying for us, the churches praying for us... that all keep us going. We truly love you all for your faithful prayers. And I just have to say thank you to whoever discovered text messages and camera phones... it certainly has helped this mommy,Love--
Dana, Trey, Ford and Hayden